The New Bike!

We got it....the NEW BIKE! How cool is it to watch your 4yr old sit on a tricycle and ride it for the first time? Most children get to ride a "big wheel" or tricycle or scooter at the young ages of 2 and up, but for us it has been a feet just to learn how to walk. If you would have asked me a year ago if my little one would be riding a big girl bike on her 4th birthday, I would have teared up and said probably not. Now I am tearing up and telling you YES....SHE DID IT!

She is so proud. The bright, beaming eyes tell it all. She might not be able to vocally tell me what she is feeling or how proud she is, but I know by the smile and eager eyes. She won't go slow on it. The new found freedom has her trying to keep up with her big sister....oh brother...we are now getting some knee pads and elbow pads :)

On a little different note, we are still unable to get our seizures under control. She had 4 yesterday....Her Neurologist has suggested changing her meds to either Topomax or Depakote? Probably don't have them spelled right, but I now have to research them...Oh how I wish I would have gone to school for my PHD....I could have been a doctor. Maybe I was meant to find and cure my little ones mysterious illness....

Still in limbo....probably always will be.

A Special Place

There is a special place in life,
That needs my humble skill,
A certain job I'm meant to do,
Which no one else can fulfill.

The time will be demanding,
And the pay is not too good
And yet I wouldn't change it
for a moment -- even if I could

There is a special place in life,
A goal I must attain,
A dream that I must follow,
Because I won't be back again.

There is a mark that I must leave,
However small it seems to be,
A legacy of love for those
Who follow after me

There is a special place in life,
That only I may share,
A little path that bears my name,
Awaiting me somewhere.

There is a hand that I must hold,
A word that I must say,
A smile that I must give
For there are tears to blow away.

There is a special place in life
that I was meant to fill.
A sunny spot where flowers grow,
upon a windy hill.

There's always a tomorrow and the
best is yet to be,
And somewhere in this world,
I know there is a place for me.

Sorry....Sorry.....

Ok...I am feeling horrible right now, I have managed to come down with some sort of Vertigo (or something) and I can't barly look at my computer (or anything else for that matter). I have been unable to reply to all of the emails/comments and stuff comming my way. For all of my Friends, Family and New Found Friends, thank you for all of your thoughts and prayers! It is greatly appreciated.

Please bare with me...I just can't function properly right now....I will email you all as soon as I am functioning properly.....

The Party Is Here!!

The Ultimate Blog Party 2008!!

This is my first party...but how fun! I'm glad I was invited. For anyone visiting for the first time, WELCOME! My name is Christa. I am a mom of two FANTABULOUS kids and a wife to my hero. I own two business and keep busy being the supermom that I want to be.

I create story books and love helping others do it as well. Pictures and stories are my life. I have an afterschool program that I do for my school district that helps kids write and publish stories...I guess it is my way of giving back.

Now tell me about yourself! I hope we can be friends!

Another One of Those Days

I think yesterday was what I would consider a terrible day. My husband keeps telling me that it could be worse, but as a mom, a sick child is a sick child and nothing is worse than that.

My little one went to school and after being at school for about an hour I got a call that she had a seizure. I hate seizures. She hasn't had an awake seizure in about a year and before that it was about 2 years. Something is always really wrong when she has awake seizures.

Last week (Thursday to be precise) our Neurologist decided to increase her Keppra by 1.5 ml...now that might not seem like a lot, but when you are dealing with kids and everything is based on weight....this is alot. I always freak out about the medication for some reason. It freaks me out to drug up my child!

Yesterday, after our seizure crisis, I had to speak with our Neurologist about the fact that we just increased her meds and now she is having awake seizures....he decided to increase the other med.....UGH.....THIS JUST SUCKS.

I then went to the school to see how she was doing and found out that she might have had a seizure on Tuesday as well.

****** Here is what I just don't understand.......WHY SHOULD ANY CHILD HAVE TO BE SICK? WHY SHOULD ANY CHILD HAVE TO SUFFER? WHY THE HELL CAN'T A MOM HAVE SUPER POWERS TO HEAL OUR KIDS?

I hate sitting by helpless. I hate having to rely on others to care about my child as much as I do....I hate knowing that when I walk out of a doctors office, that some other sick child is going to walk in and I am now "out of sight, out of mind".....

A Heart For Children

One hundred years from now
it will not matter
what car I drove,
what kind of house I lived in,
how much money I had in the bank,
Nor what my clothes looked like.

One hundred years from now
it will not matter
what school I attended,
what type of typewritter I used,
how large or small my church.

But the world may be
a little better because...

I was important
in the live of a child.

~ Author Unknown ~

Overcoming Adversity

There is a little bit if excitement building around our house, as my little M is getting ready to celebrate her 4th birthday. She has learned to ride a tricicle in the past two weeks, so we have decided to get her a new one for her birthday. We went shopping this weekend to see what was on the market. I am so excited for her. Although, we have found out that we need a special seat, so that she doesn't push off the back. We also found out that we need these special foot pedals so that her feet will stay secure while she rides. All in all our little tricicle is going to be about $500...but she is worth it. The independence she gets from riding her own bike is evident in her HUGE smile as she pedals past us.

We also got to go out onto our little playgound in the backyard this weekend. We managed to put up some little safety rails on the slide and now she has full range of the back yard. There isn't anything that can hurt her, well except the typical risk.

Have you ever set back and watched a kid play on their own terms? Try it sometimee. There really isn't anything like it. My pride and excitement was bubbling over. I watched my kids play together....it was so NORMAL, which isn't a word that we get to use very often. I put a blanket in the grass and just watched...I didn't say a word. I didn't flinch, when my little one was hanging about a foot off the ground as she was slipping off the slide ladder....I didn't flinch, I just let her work it out. I let her be her...I let her figure it out....as a MOM it was liberating....as the biggest fan of my daughter...It was EXCITING.....


Here is a quote I found:

"It doesn't make any difference whether what you face is something that affects your work, your personal relationships, your sense of security, your appraisal of self-worth, or your appearance--the way you think about your situation largely determines whether you will do anything about it and what you will do."~ Dr. Arthur Freeman and Rose DeWolf

Speech Therapists

Ok..now I really don't want to offend anyone, but I just don't know what it is with Speech Therapists. I can get along with just about anyone, except Speech Therapists. Maybe it takes a certain type of person to do that job and I don't get along with that type of person.....

I had an IEP meeting last week with my daughters school "team" and during this meeting our ST proceeded to tell me that my daughter doesn't talk and won't talk (well for a while) and won't work with her to help her talk. I should probably clarify that she will work with her but on a limited basis. She proceeded to tell me about the dang pyramid and how everything happens in a certain order and speech was last and that it didn't matter how much we worked with her on speech it won't help. Can you believe that???? I proceeded to rip her a new...A**. I was pretty pissed off. The meeting of 10 people turned into just her and I, everyone else just sat there stunned. I told her that "my little one is unique. You don't know when things will click. My job has her mom is to be sure to give her ALL of the tools necessary, so that when it clicks she will be ready." If I waited to work on things when my little one was ready....WE WOULDN'T EVEN BE WALKING YET!!

I will give our ST a little credit, she is VERY VERY smart. She is just very SQUARE. When you work with special needs kids you have to be able to think outside the box! Not all kids learn the same way, not all kids have the same triggers...my daughter will do ANYTHING for you....you just need to think of an abstract way to show her it is important. I am a MOM not a DOCTOR, so I have to rely on people to tell ME what to work on. I really don't want someone telling me it is a waste of time. Let me decide that.


*****

"If you don't know where you're going Alice, how will you know when you get there?" From Alice in Wonderland